kylie - exhibition print

“He was in my arms when he died, on a sunny day, in his own house that we built. He was waiting for the children to go to school before he started. He was looking into my eyes and we lay down. He took his two last breaths and he died in my arms. It was very quick. He’d said his goodbyes, said, “I love you”. It was an intense connection. It was a very powerful moment. When the kids came home, all of us sat around the bed, cried, and said what we needed to say. We wouldn’t have been able to achieve that without palliative care, and that would have broken Bern’s heart.” – Kylie

Kylie cared for her husband Bernard. Diagnosed with testicular cancer at nineteen, he was given the all clear after treatment. It reappeared in 2011, and eleven weeks ago, Bernard died at home.

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Kylie, Carers in the Grampians Carers_Exhibition print. Kylie Carers_Poster. Kylie
Carers_Exhibition print. Kylie

What is it like to care for a family member at home when they are in palliative care? How does that change your relationship? How does it change how you live your life? What is it like when they die? How do you cope with grief?

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CarersInTheGrampians

Jade Odgers from the Grampians Regional Palliative Care Team, and digital storyteller Pippa Wischer discuss the project’s goals. Two of the participants, Nola and Maddie, discuss their involvement in the Carers in the Grampians project, and what it meant to them.

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Kylie, Carers in the Grampians

“He was in my arms when he died, on a sunny day, in his own house that we built. He was looking into my eyes and we lay down. He took his two last breaths and he died in my arms. It was very quick. He’d said his goodbyes, said, “I love you”. It was an intense connection. It was a very powerful moment.” – Kylie

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Carers_Book. Kylie

“It was really important to Bernard and me, and to our children, to have a home death. When it was time, we brought the bed into the lounge room because I said I want people to continue to be around him. He’s going to be part of this. This is a part of life. It’s just a natural process for us.” – Kylie

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Kris, Carers in the Grampians

“We value life and friends more now, and it’s made our relationship stronger. I’m thinking of doing Meals on Wheels, or volunteering somewhere. I just need to get out so I can find my feet and start again.” – Kris

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Carers_Book. Kris

“We value life and friends more now, and it’s made our relationship stronger. I’m thinking of doing Meals on Wheels, or volunteering somewhere. I just need to get out so I can find my feet and start again.” – Kris

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